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Democratie sanitaire, democratie en sante, empowerment des malades : quels que soient les vocables utilises, la participation des patients semble admise. D'objets de soins, ils seraient enfin reconnus par les institutions comme citoyens a part entiere, sujets conscients, responsables et capables. Un tel consensus est a interroger. L'histoire tumultueuse de la democratie sanitaire est faite de conflits, de compromis, de victoires et d'echecs. Contrairement aux idees recues, elle ne commence pas aux annees sida. Des le XIXe siecle les malades ont combattu pour etre entendus. Ils se sont organises et ont ete actifs. Comment ont-ils contribue a impulser une dynamique democratique ? Sous quelles formes se developpe-t-elle actuellement ? Quelles sont les ambiguites des dispositifs institutionnels contemporains ?Alors que nous avons celebre les 20 ans de la loi sur les droits des malades, les difficultes du passe aident a comprendre les tensions persistantes du present. Par cette mise en perspective completee par une enquete de terrain en milieu hospitalier, Lucile Sergent pose un regard neuf sur le rapport des citoyens au systeme de sante. Elle propose de nouvelles ressources et un outillage pour penser la participation des malades et les politiques mises en ¿uvre.

Patient advocacy. --- Patient participation.

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Patient monitoring

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Within the context of the ISO/IEEE 11073 family of standards for device communication, a normative definition of the communication between continuous glucose monitor (CGM) devices and managers (e.g., cell phones, personal computers, personal health appliances, set top boxes), in a manner that enables plug-and-play interoperability, is established in this standard. It leverages appropriate portions of existing standards including ISO/IEEE 11073 terminology and information models. It specifies the use of specific term codes, formats, and behaviors in telehealth environments, restricting optionality in base frameworks in favor of interoperability. This standard defines a common core of communication functionality of CGM devices. In this context, CGM refers to the measurement of the level of glucose in the body on a regular (typically 5 minute) basis through a sensor continuously attached to the person.

Patient monitoring.

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Patient participation.

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Family-centered rounds (FCRs) are multidisciplinary rounds that involve medical teams partnering with patients and families in daily medical decision-making. Multiple FCR benefits have been identified including improving patient satisfaction, communication, discharge planning, medical education, and patient safety. Main barriers to FCRs are variability in attending rounding, duration of rounds, physical constrains of large teams and small rooms, specific and sensitive patient conditions, and lack of training of residents, students, and faculty on how to conduct effective and effecient FCRs. In the last decade, many programs have incorporated FCRs into daily practice due to their multiple perceived benefits. Future FCRs should focus on better operationalizing of FCRs and reporting on objective outcomes measures such as improved communication, coordination, and patient satisfaction that are crucial for healthcare.

Patient satisfaction.